All of us walk this earth in our ordinary lives, and for each of us it is extraordinary. Here, a gathering of bits and pieces I've written over the last few chaotic years- some for publication, some for myself- all thoughts and writings from my life as I try to make a difference, raise our children, find our way in the world of autism and hope for our son Mendel.
Wednesday, January 25, 2017
Notwithstanding the general chaos of the month of Tishrei, I love this time of year. I love Fall in NYC and I love the High Holidays. For some people, this is a time of deep introspection and prayer. To be perfectly honest, with my multiple and overlapping responsibilities at home and in my community, that's a luxury I don't usually get much of. I make do with some very concentrated prayers and squeeze all the intention I can into them: "please Gd I need... (looong list)" or "please Gd help me with (looong list)" or just: "G-d, You know what I need, make it all work! Now I gotta run" and I just pray that my concentrated prayers reach Him. Then it occurred to me that in leaving out much of the formal written prayers, I'm skipping some really important formalities, like, for example, thanking G-d for what I have before asking for more. Sometime in the middle of that night, I made my way through my house, overwhelmed with gratitude for my many blessings, and for the moment, and this poem sort of wrote itself.
Pre-Dawn Prayer
Thank you G-d for these children
Not even for their shining faces
Just for their breathing
At three a.m.
Twisted in their blankets
In their rooms
(thank you G-d for their rooms)
Asleep, and safe
With parents down the hall- asleep
And baby sister
paused for a brief time between late nights and early morns
Angel-faced, asleep for now
Thank you G-d for now
And always.
Wednesday, July 27, 2016
A Poem for My Baby Girl
While You Still Fit
To hold you nowand the other hip
Thursday, November 26, 2015
The Son Who Cannot Ask
The Son Who Cannot Ask
Like the Jews in Egypt, our son is enslaved.
He looks okay, for the most part. Luminous blue eyes with curtain-like lashes and sweet lips set against perfectly rounded cheeks. A charming build, a strong gait, sturdy three-year-old legs.
But he is not okay, and we, his parents, know and live with this every day. He is not okay, because he is enslaved. Like his ancestors, he is in a prison; his is a prison of the mind, perhaps the heart.
Mendel has autism. At three, his words come stilted and only one at a time, spoken with difficulty only when he really, truly wants something enough to say it. Sometimes, he stands at the periphery and, just for a moment, watches cousins or peers at play. He laughs to himself and seems to want to join, then darts off in the other direction because he can't. You can sometimes catch him eyeing his older sister, whose name he will not say, with something akin to interest. But she will take his hand and try to dance, and he will wrestle free and revert to a solitary puzzle.
But like the Jews in Egypt, we pray for redemption. It is the light at the end of our darkness; the faint dream that pulls us together when we begin to fray. It is possible, and besides, we believe in miracles. The sea can split; our son can talk. His personal exile is deep and real, but there is, always, the possibility of freedom.
An image comes to my mind: Mendel, at two, with a bucket of wooden blocks. Listlessly, he piles them up until the tower falls. He is not perturbed when his sister knocks it over; there is no emotion as, silently, he begins to build again. An evaluator from the State visits and points this out. "He plays with them too often. He doesn't seem to care." I could not see it then, but I do now: Mendel is enslaved, locked in a routine of his own creation, but one that seems to matter little in any sort of real way. And I think of the Jews in Egypt, enslaved in a routine of worthless, meaningless labor, where the work of their hands would crumble, and the bitterness of their troubles made them hard so as not to even care or hear the call of redemption.
Pesach, the Hebrew word for Passover, I recall reading somewhere, can be read as two distinct Hebrew words: Peh(mouth) sach (speaks), intimating a redemption on some verbal level. And indeed, commentaries note a juxtaposition in the text chronicling the gradual descent into slavery. "And it came to pass in those many days, the king of Egypt died and the Children of Israel sighed from the bondage and they cried…" They cried then, say the commentators, in the aftermath of Pharaoh's death, in a period of national mourning, because to cry for their plight at any other time was forbidden by their captors, and so they disguised their pain as patriotism and called out to G‑d.
This was the beginning of their exile, an exile so deep it limited even the words they could say, and, as the generations wore on, entrenched until it had enslaved their very souls: the thoughts they could think; the things they could feel.
And I wonder: How to pull one out of such slavery? An entire people, generations of children lost to the memory of freedom—how to move them from suffocating silence to a proud nation, G‑d's chosen? I look at my son and wonder the same thing.
In Egypt, G‑d sent Moses. Moses, man of G‑d, who humbly bridged the gap between heaven and earth and whose personal struggles and journeys reflected the transformation of his people.
Moses was a spiritual enigma: a man of Atzilut, says the Kabbalah, referring to the highest of four worlds of spiritual consciousness. Atzilut, from the word etzel, near, describes a world near to G‑d, and distant, in so many ways, from the day-to-day functioning most of us experience. For most of us, living in the world of action, Asiyah, life is a pretty simple eco-system of mind and matter. Our thoughts are grounded; they translate easily into the words and actions that fill our days. We observe the behaviors of our world and act according to its norms. Moses lived in Atzilut, in a world of the mind, nearer to G‑d than to the norms of human life. For this reason, Moses spoke with a stutter. Was he imperfect? Was he shy? On the contrary—his thoughts were of a higher dimension; his reality had little to do with life in this world. He was a man of G‑d speaking to mere men, and the line of communication across such distance inevitably blurs.
A video clip of the Rebbe, stored in my mind: An anguished man leans in to ask the Rebbe's blessing for his son, who is autistic. The Rebbe offers his blessing, and then adds, surely the fact that an autistic child is disconnected from other people shows that he has an even closer connection to G‑d, and spirituality. And I think about our son: he of the intense gaze, the joy he radiates on the holiday of Simchat Torah, the way he probes a Talmud book larger than him and dances to a soulful Chassidic melody. He is a lofty, beautiful soul but it is not enough for me. He is enslaved.
And so I follow the story of our collective redemption, as our ancestors, led by Moses, travel from darkness and boundaries and limitations to freedom. There's no instant cure for a slavery this deep; it's a process.
I think of the initial breakthrough, as the Jewish people left Egypt and crossed through a sea that miraculously, majestically, parted for them and revealed a dry path to go forward. That undersea world – always there but never seen or really understood – opened up in a stunning split of the water covering it, revealing incredible treasures and an entire world beneath the surface. And beyond a physical display, a spiritual revelation occurred then—the knowledge of a G‑dly life-force was so clear to see that even a simple maiden, says the Midrash, pointed at G‑d's presence on the banks of the Sea of Reeds and said, "This is my G‑d."
I can picture the point—it is an expression of that which is clear to the mind, and a still elusive pursuit for my son. He is slowly, painstakingly, learning to point naturally and purposefully, and I wait for the day that he will demonstrate clear understanding with the deliberate direction of a finger. In the trajectory of the redemption, it is the point that seems to pierce through the layers of bondage. We can see G‑dliness; it is so real, we can point to it.
But redemption is a process, I remind myself and require no further proof for this than the Jewish people, mere days after the dramatic events at sea, complaining to return to Egypt. They are still enslaved; their souls still gripped by a deep power. It's a one step forward, two-steps back proposition that is all too familiar.
We know all about the process. Day in, day out, our son sits in a little classroom at home while other children dance and paint in school. He is learning: to imitate, to repeat, to follow instructions and make neuro-connections that he will perhaps one day make on his own. Each step is carefully noted; what he learns, he must then work to maintain. It is hard, hard work but he is enslaved and we have no choice. We wait for his redemption. I clean the house for Passover, pull out the Haggadahs, vacuum the couch and dream of his redemption. He is here; he is hidden; he is stuck. We will work hard, but only you, G‑d, can pull him out.
I imagine Jethro, venerable father-in-law of Moses, traveling to Sinai on hearing of the giving of the Torah, that grand climax of the exodus from Egypt. What exactly did he hear? asks the Midrash. The answer resonates with me and fills my heart with hope. He heard that Moses had been cured of his stutter, and being a man of deep understanding, Jethro understood this event for what it was: a connection, a link, created between an Atzilut consciousness and Asiyah living. Between the world of the mind and the world of action. A great spirituality finding expression in the functions of life every day. It was redemption, he understood, not just for Moses, but for the hidden spirituality of the Children of Israel, for the great G‑dly spirit that lay enslaved, trapped in an exile that did not allow it expression, nor allow it a voice.
And I think, finally, of the Seder, where we celebrate this redemption by speaking of our freedom, of the great and glorious process that wrought a nation of kings from an enslaved and broken people. Our son will be at the Seder, of course. Of the four sons, this year, he will be the one who knows not how to ask the questions. It is for him that the Haggadah says, "Aht ptach lo"—you shall open his mind and explain to him the depth of the exile from which we were redeemed. It was an exile where the soul and mind were enslaved and had no voice-- an exile that needs no explanation for us. Our son lives in exile every day, and we watch, and work, and pray.
This year, we are enslaved. But next year, perhaps next year, we shall be free.
Wednesday, November 25, 2015
A Rant
Monday, November 23, 2015
A Different Five
A Different Five
Desperation on a Summer Night
from my old blog, posted in 2010.
Here's what I wrote that summer night:
…So tonight, I get dressed up all pretty and drive an hour myself to a cousin's wedding. It's lots of fun and I can forget, for a few hours, the vacant stare that has haunted me for the better part of a year now and the surging, raging desperation that has become the dominant emotion my husband and I feel constantly. He is not doing better, he is not doing better, he is not doing better!!! Our son Mendel has autism, he must do better. Not doing better is doing worse. The clock ticks relentlessly. I'm always pretty vague about my kids' exact ages and usually need to do a finger count for a precise number-- but Mendel's I know perfectly. He is 3 years, 7 months old. He is closer to four than to three. He is not forming sentences. He will barely acknowledge his siblings. He is not progressing and we are desperate, desperate for a miracle.
Wedding fun over with for the evening, I'm thinking of all this as I drive home, down Flatbush Avenue, toward the Brooklyn Bridge. Stopped at a light, I see a wheelchair, in mid-street, propelling itself against traffic, and upon closer look- it's a black woman, one-legged, wheeling her wheelchair with one arm; the other outstretched to the car windows on her left. A white SUV pulls up fast into her lane and nearly hits her head on. She does not react at all, her face a plea as she looks up at each car, and then she is at my window. The light has turned green, cars are already honking. But good lord, I thought I had it hard! I feel nothing but pity and reach into my glove compartment for the one of the singles that are always floating there.
One bill comes up- it's a twenty. There's nothing else in there.
Now here is where I pause. Certainly I feel pity but I don't have a twenty to spare, and I never give twenties to panhandlers. I think of the bills-- and the grocery order tomorrow, and the doctor bills that have not yet been paid, and the personal debt that rises daily. I don't have a twenty to spare; I really don't.
But here she is- she's seen me fish around, her arm is outstretched, eyes lit in anticipation.
I roll down the window and give her the twenty. "Ohhhh my G-d" I hear her say as I speed off. "Ohhh my G-d."
And, appropriately, it's G-d I'm talking to right now as I turn onto the bridge and drive home. Because you see, G-d, I'm that desperate. Desperate enough to wheel down a barely lit street against the traffic. Desperate enough to do whatever in heaven's name I have to do to get my son back- if I could just drop all the other balls I'm juggling with no consequences and knew what exactly it was I should do. I'm not panhandling in a wheelchair but I'm that desperate, G-d- I'm that desperate!!!
And I gave that woman a twenty and it made no sense. Because you know, G-d, that I don't have it.
So give me a twenty, G-d. Okay? Just give me a twenty and let's get this thing over with.
Choosing Gold
Firstly, my body is just like any other woman's. It's not a baby machine (a congregant actually called my friend that, on learning of her fourth pregnancy!); it does not pop or otherwise churn out babies. Pregnancy is hard; it's annoying and painful and exhausting and nauseating and all the other things it is for any woman. I might not complain to you , but it's a pain all the same. And yet I go for it, again each time. “So good to see you!” I greeted a congregant last Yom Kippur. “You too!” she said, “I come here every year and every year you are pregnant with another one!” I've been visibly pregnant for perhaps one Yom Kippur of the last eight, but I understand; it seems that way to her. It's part of the whole package: the Rabbi husband, the wig, the modest dress and the children trailing behind. It's how they see us. It's who we are.
Thanks to my dear friend Chanala K for her valuable editorial suggestions on this piece.

